The Childhood Cancer Data Initiative (CCDI) aims to improve treatments and outcomes for children, adolescents, and young adults with cancer by facilitating the collection, analysis and sharing of childhood cancer data. CCDI represents a proposed $500 million investment over 10 years, consisting of a proposed $50 million increase to NCI’s appropriation each year, beginning in fiscal year 2020.

Public involvement is critical to the success of the CCDI. Indeed, the success of the initiative will depend on breaking down silos and encouraging everyone with an interest in fighting childhood cancer to work together, share information, and collaborate on solutions.

We need to hear from you— patients, parents, researchers, clinicians, advocates, data scientists, engineers, and anyone with a bold idea to advance progress against cancer through collaboration and information sharing.

NCI will use the ideas, suggestions, and comments you provide to develop recommendations on how to make the most of the federal investment to collect, analyze, and share data to address the burden of cancer in children, adolescents, and young adults.

The research topic areas addressed include:

  • Research Questions and Data Analysis Tools
  • Data Collection
  • Data Infrastructure
  • Data Sharing
  • Value of Childhood Cancer Data Sharing

You may submit your idea here: