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Young Adults Transitioning to Adult-focused Care

As a young adult who was treated for cancer in childhood, your health care needs are now more properly focused in an adult care setting, with a primary health provider who is either a family practice or internal medicine specialist. You should also know that there are a growing number of specialized programs for adult survivors of children’s cancer whose clinicians focus on long-term issues related to children’s cancer and its therapy. Whether you work with just a primary health provider or a provider and a long-term survivorship program, it is important for you and your team to be knowledgeable about your cancer and the treatment you received.

You can request information from the healthcare team and hospital that treated you for cancer that includes the following information, which will help you and your adult-healthcare team make the most informed decisions possible.

Specific Treatment Information

  • Tumor characteristics, including sites, stage, grade
  • Details on treatment
    • Type of treatment (surgery, chemotherapy, radiation, transplantation, hormone therapy, gene therapy or other)
    • Agents used (regimen, total dosage)
    • Dates of treatment
  • Serious side effects
  • Support services provided (psychological, nutritional, other)
  • Contact information for treating institutions and key individual providers
  • Name of key point of contact and coordinator of continuing care

Long Term Information

  • Possible late and long-term effects of treatment
  • Possible psychological effects
  • Information on possible insurance, employment and financial issues, if any
  • Need for ongoing health maintenance and specific recommendations for lifestyle changes to promote health
  • Genetic counseling and testing

 

The First Month off Treatment
Two to Six Months off Treatment
Six to Twelve Months off Treatment
One Year off Treatment and Beyond
Long-Term Follow-Up Care

© The Children's Oncology Group
The information and content provided on this website is made available for informational purposes only for children and their families affected by cancer. While the Children's Oncology Group strives to provide accurate and up-to-date information, the information may be out of date or incomplete in certain respects. Please do not rely on this information and seek the care of a qualified medical professional if you have questions regarding a specific medical condition, disease, diagnosis or symptom. The information and content presented herein is not intended to replace the independent clinical judgement, medical advice, screening, health counseling, or other intervention performed by your (or your child's) health care provider. Please contact "911" or your emergency services if this is a health emergency. No endorsement of any specific tests, products, or procedures is made herein.